Our Mission

We explore the intended and unintended consequences of genomic information, precision medicine research, and scientific technologies such as machine learning technologies on law, equality, healthcare outcomes and research participation.

We aim to develop best practices and policy guidelines that respond to community needs and scientific stakeholders and that promote inclusion and equity in clinical genomics and precision medicine research.

Our Events

Click to view our hybrid events.

Disability Ethics, Intersectionality, and AI/ML Bias Speaker Series (2023/2024)

"On Being an Outlier in a World that Worships Optimization"

Rua Williams, PhD
Assistant Professor
User Experience Design
Purdue University

Register Here!

Monday, February 26, 2024
Time: 1-2pm
Location:
Presbyterian Hospital
PH20-200
622 W 168th St
Zoom

Watch the recording here.

"Understanding the Disability Community's Needs for Communicating with Social and Caregiving Networks"

Rupa S. Valdez, PhD, MS
Professor
Public Health Sciences & Systems and Information Engineering
University of Virginia

Register Here!

Monday, April 1st, 2024
Time: 1-2pm
Location:
Presbyterian Hospital
PH20-200
622 W 168th St
Zoom

Watch the recording here.

"Who's Tool is it Anyway: Engaging Clinicians and Patients as Experts when Creating Novel Healthcare Technologies"

Megan Hofmann, PhD
Assistant Professor
Khoury College of Computer Sciences
Northeastern University

Register Here!

Monday, April 8th, 2024
Time: 12-1pm
Location:
Presbyterian Hospital
PH20-200
622 W 168th St
Zoom

Watch the recording here.

Disability Ethics, Intersectionality, and AI/ML Bias Speaker Series (2022/2023)

"The Intersection of Diabetes and Blindness: Lessons about Healthcare Biases"

Allyson S. Hughes, PhD
University of Ohio

Nazanin Heydarian, PhD(c)
The University of Texas at El Paso

Thursday, January 26, 2023
Time: 12-1pm
Location:
Presbyterian Hospital
PH-200
622 W 168th St

Watch the recording here.

"Disability Accessibility and Fairness in Artificial Intelligence (AI)"

Cynthia Bennett, PhD

Monday, February 6th, 2023
Time: 1-2pm
Location:
Biomedical Informatics Conference
Room 20-200
Presbyterian Hospital PH-20 (20th fl)
622 W 168th St
New York, NY 10032

Watch the recording here.

"Data Science For Everyone, By Everyone: Applying Universal Design to build a more inclusive data science community"

Andrew Hasley, PhD
NIH Office of Data Science Strategy

Thursday, April 20, 2023
Time: 12-1pm
Location: Zoom

"Regarding the Revolution of AI and ML for Persons Who Are Blind"

Cary Supalo, PhD
The Educational Testing Service

Thursday, May 4, 2023
Time: 12-1pm
Location:
Presbyterian Hospital
PH20-200
622 W 168th St